Hibernation

It's been almost a month since my last blog post, I apologize for not keeping you in the loop! Unfortunately the reason for most of my lack of blogging has been because I haven't been feeling too great, but I have had some great moments mixed in there and I am very appreciative for that.

When I last blogged I was beginning to feel a bit of "Biop-xiety" because I had a bone marrow biopsy coming up, and it went really well and it also went really terribly. I officially have no evidence of disease in my bone marrow (which is where leukemia originates) so obviously that's amazing. However with many types of cancers, when you get the good news of no evidence of disease, your doctor cheers and tells you that you can be done with chemo and that they will see you about every 6 months just to make sure you're still in the clear. ALL is a bit different, because people with this form of cancer are so prone to relapse. I am very fortunate that I have been able to achieve this sort of remission so quickly and effectively using solely chemotherapy (many people are required to either have a bone marrow or stem cell transplant in order to stay in remission) and hopefully that will continue to be the case, although I am finishing my intense chemo soon, possibly as early as April 18th. From there I will still have 2 weeks of radiation, and 2 years of lower doses of chemotherapy (bi-monthly lumbar punctures, monthly Vincristine injections, monthly steroids for 4 days in the pill form, and almost daily chemotherapy pills called Mercaptopurine)

That's all the good news about the bone marrow biopsy, but as for the actual procedure itself, things went terribly. [If you're squeamish, skip this paragraph] This was my 3rd biopsy, and by far the most painful procedure I've ever had (including multiple broken bones, 11 lumbar puctures, and many other crashes and accidents). The doctor who did it lucked out and picked a spot in my hip that was full of scar tissue because as luck would have it, he chose the exact spot that my last biopsy was at. He used a good amount of lidocaine, but 5 lidocaine shots don't feel great either and they sure don't help the pain of a needle going through your hip bone or into your bone marrow. I've learned my lesson when it comes to asking to see needles and test tubes of whatever comes out of me, but the needle felt exactly like he had gotten a good sized chain squeezed into my hip bone, and then he pulled it back out through a much too small hole. And this didn't just happen once, because he was unable to get what he needed the first two times. Once all was said and done, I was incredibly sore for about a week, and was still sensitive at the site for another week. My next one happens at the beginning of maintenance, so it's sort of already on my radar. I told Dr. Sharman how terribly this last one went though, and he plans to do my next one. He said he's only bent one needle during a bone marrow biopsy and it was on a retired lineman for the 49er's.

At the beginning of March I started my final 2 month round of intensive chemo, and visited my doctor up at OHSU for the first time since October. It went really well, they didn't really have much to tell me, and just answered any of my questions. They also discovered that my body likes my PICC line so much that over the course of the last few months it had sucked my PICC line like 3 centimeters further into my body than it needed to be, so it was tickling my heart. It was nice to get that taken care of, and that whole trip was very uneventful which is fantastic. During the first week I started a brand new chemo drug, and I also was taking a full week of a quite high steroid dose. It all started out fine and dandy through my trip to Portland, but by the weekend I had been on the steroid for almost the full week, and I was about to get another dose of the new chemo drug. Long story short, I hit a wall.

I don't think it was either of the drugs in particular, but rather the fact that my body has been pumped full of chemo drugs for just over 6 months at this point. I went into hibernation for almost 2 weeks. I had headaches and body aches of all different sorts, major fatigue, and a bit less than my usual positive attitude. I cried a few more tears than normal, and the pain from the headaches just absolutely wore me out. I knew that it was coming, and I was prepared to handle it, but it was rough. I finally crawled out of my hibernation in the middle of last week, but I'm still dealing with some headaches and fatigue that comes with the chemo drug. I also started another week of steroids on Monday, but this time I was prepared to deal with it: I deep cleaned the house, reorganized, got myself lined up with some healthy food choices, did some art, and started some pretty nifty crafts. So far, I'm handling it much better and haven't shown any real signs of "roid rage" yet and when I start getting restless I have about 10 unfinished projects to work on right now!

Now on to updates about the fun stuff!

I got my chickens on our way home from OHSU, they're growing like weeds, and yesterday one of them tried to fly the coop already, even though our coop isn't even built yet, so that's the plan for later this week. I thought I would have more time! They are so cute, and they absolutely love their daily worm search time (I bring them a bucket of good dirt and hide worms and potato bugs in it) and today they even got an extra adventure and got to spend some real life outdoor time in a laundry basket. I also have a bunch of raised beds ready to go, and already have turnips, carrots, radishes, peas, kale, swiss chard, cabbage, beets and spinach in the ground! It's starting to feel a lot like spring, especially since the sunshine finally came out! It makes it pretty easy to find joy everyday with all of these cool things going on in my backyard.

A huge shoutout to the awesome little art workshop that Kim Pickell put on,
it totally pulled me out of my funk and got me back to creating things! 

A List of Things

I tried writing a comprehensive paragraph, with lots of information and what-not. But it was absolutely terrible. I think I will have more success with a list today. So here is a list of things, in no particular order.

1. Most importantly, we're going to get chickens soon. I'm super stoked, because lately I've been sort of obsessed with getting back to the homesteading/off the grid sort of lifestyle that I grew up with. They will be great for recycling food that I have to throw out if it gets too old (old food+neutropenia=infections) and I just love how entertaining they are. Doctors orders, I just can't clean their coop when I'm neutropenic.

2. On that note, we also are going to build some more raised beds for the garden, because I bought this awesome survivalist package with 11,000 seeds in it. I'm pretty excited to grow some food this summer, and to feed the stuff that we don't like to our lovely future chickens. I'll have to wear gloves when I'm digging in the dirt, and I'll do my best to wear sunscreen even though I hate it. But I'm just so excited, and I am loving the fact that winter is almost over!

3. I haven't even finished my intensive chemo yet, and I'm already worrying about next school year. I'm worried because for the entire 2 years I am on maintenance chemo they will be trying to keep my ANC at around 750. At it's lowest, it was 6 (which is super terrible) and right now my ANC is almost 2,000 which is on the low side of normal. But 750 is still considered slightly neutropenic, and I will still be prone to infections and viruses.

4. A couple weeks ago one of the nurses at the clinic told me "I've never seen anyone with such terrible lab results look and behave like an actual human." She was thinking this when both my ANC and platelet counts were lingering below 10, but didn't tell me until my ANC was back up over 1,000. This made me pretty proud. What has my life come to?

5. On Monday I finished my last chemo of this phase (Phase 3, Interim Maintenance) and the whole phase treated me pretty well. I had an escalating dose of Methotrexate every 10 days, and got 5 more doses of Vincristine (which is more than most people get during their entire chemo protocol). My fingers are more numb that they've ever been, and I have had some foot cramping and random shooting pains in my feet and hands from the neuropathy. Fingers crossed it will go away someday- and I CAN still cross my fingers, but shredding cheese is questionable.

6. Since I will be moving on to my last intense phase, that means it's time for another bone marrow biopsy. #anxiety. My last bone marrow biopsy showed that after just 22 days of chemo I was already in remission, but had 0.001% remaining disease. My hope is that this bone marrow biopsy will show no evidence of disease, or NED. Keep me in your thoughts next Wednesday, it's a pretty painful procedure and I will know results within about 48 hours.

7. When I left OHSU in October they told me to be very aware of how I'm feeling and to be constantly checking my temperature because of my likelihood of getting a neutropenic fever. That was the only thing that could have delayed my treatment. I assumed I would have at least a couple, which could push my chemo schedule back a month or more. At that point, I figured I would probably finish my intense chemo in late May or June, just in time for summer. At this point (fingers crossed) I have not gotten a single fever or had any set-backs. That means that if all continues to go according to plan, I will be finished with the crazy stuff by the end of April!

8. Chemo brain is legit. Max asked me to wash the sheets on Tuesday, and I just remembered I haven't done it yet. So I've got to go do that. Right now. Before I forget for another couple of days.

One last phase of intense chemo to go! 

Be Positive

My cancer is a fluke. There is nothing that I did that made me more prone to getting Leukemia than any of you. I don't mean to scare you, but it could be anyone. I was a vegetarian for 5 years, and all my life I have generally eaten a very healthy diet of organic things, wild game, and home cooked meals. I would not consider myself overweight, in fact, I always classified myself as an athlete even if I hadn't competed in a sport for months. I have never smoked a cigarette in my life, and months before my diagnosis I had stopped drinking alcohol all together. I always took my vitamins. I didn't even have a primary care physician, because I hadn't needed once since I had a pediatrician. When I went to the hospital on the day I got diagnosed, I was secretly afraid that I had diabetes, or anemia. Cancer never crossed my mind, because I thought cancer had a root cause, something that a person did that caused them to get cancer.

On a side note; now that I have (or had, however you look at it) cancer, when I see people doing things that are known to cause cancer, I'm not going to lie. It makes me mad. We all have our vices, but remember: Cancer sucks, it's expensive, it can make you infertile, and in order to stop it they have to pump your body full of wonderful drugs that also happen to be carcinogens. So if you're going to do things that cause cancer, I hope it's worth it for you!

I know that many people struggle to have a positive outlook on life when things don't go their way. I know that many people struggle to have a positive outlook, even when things ARE going their way. So when you see what I'm going through it might be surprising that I am able to stay generally positive. I am not always all smiles, you don't see me when I feel like crud, or on the days when I spend the whole day on the couch (today). But generally, I am happy and positive and looking on the bright side.

This is punny, because B+ is my blood type. So you could say... Being positive is in my blood :)

What do I physically do to help myself stay positive, even when it's very easy to not be?

I talk to my dog like he's a human, because if I didn't there would be many days where I wouldn't have a conversation with anyone until after 5:00. 

If it's not pouring down rain I go outside at least once. If the sun is out, I sit in the sun even though I'm not supposed to because of the chemo drugs and antibiotics. 

I remain thankful for my support system, and if someone offers to hang out with me, I take them up on it. It helps that all of these people happen to be experts on being positive. 

I try to manage my symptoms, and when I'm successful in that, I count it as just that: A success. 

I allow myself a small amount of trashy TV each week, and other than that I try and avoid it. No Kardashians for me. 

I have never stopped thinking of the future: In the next 3 years (thats 2 years of maintenance chemo and 1 year of being DONE) we will build a house and try and fill it with kids that may or may not be biologically mine. 

I get enough sleep, but not too much. 

I try not to be too hard on myself. I've always tried to eat healthy, but for the 4 days after I get Vincristine I crave fried and fast foods. Sometimes I give in to the cravings.

If I am moping around, or haven't done what I need to do to take care of myself, my wonderful husband always seems to know exactly what to do. Sometimes I need to get out of the house, sometimes I need an inflatable mattress in the living room, and sometimes I need good food, or to get hydrated. He can read my mind though, so he always know what I need before I know what I need. 

I still find joy in my daily life, and how could I not stay positive when my life has so much joy in it. Also, If I'm able to find joy in my daily life now of all times, I can only imagine how great my life is going to be when this is behind me. I can't wait for that, and that helps me stay positive.

But as you can imagine, there are times when I can't stay positive ... Why me? ... I try not to ask that question.

A quick update: I started phase 3 on January 4th, and got a lumbar puncture that day. The procedure went really well, the doctor used more lidocaine than they usually do, so I didn't feel a thing. I thought I was in the clear. I was wrong. I spent 2 weeks with a headache this time, as well as a feeling in my back and neck that is hard to explain, sort of similar to spasms. It was pretty terrible. Last Thursday I went into my doctor appointment skeptical, because I didn't know how the new chemo had affected my blood counts, so I was wearing a dreadful procedure mask. I met with the doctor, and he looked at my labs and let out a "Woohoo!" -- My ANC was over 1,000 (which is almost as high as before my diagnosis). That means that my body is actually capable of fighting off some bugs on its own right now! On Friday we celebrated by going out to dinner, one of my first times out in public since September, and it was great. Right now my appointments in Eugene are only every 10 days, so while I still feel absolutely terrible for a few days after chemo, I do have enough time to recover a bit and enjoy myself.

I asked Facebook what I should blog about, and this post came about because of a comment about my positivity. I've already got another post in the works, talking about the other things that were mentioned. If you want to ask something, or want me to write about something specific, let me know!

Also, what do you do to stay positive?

2015, You're Cut Off.

I'd like to inform you that I only blog when I'm feeling medium, usually. I don't blog when I'm feeling really bad because I can't focus and I'd probably just complain anyway. And I don't blog when I'm feeling really good because I'm taking advantage of feeling good and actually doing things or catching up on my life by doing things like cleaning, organizing, and paying bills. I haven't blogged in a while because for about a week I was feeling pretty bad and then I spent a week pretty fatigued but feeling decent, and this last week I've been feeling really good! The feeling good was perfectly timed, I've been busy as a bee! Although, thats all relative. In my normal life, I wouldn't have considered the last few weeks very busy, but for the new me it was busy. We had company from family, celebrated Christmas twice, had a few doctor appointments (although not as many as usual) and then this last week my best friend Jenna visited us from Atlanta!

Right now I am in between chemo phases and it isn't often that my body gets time to recover, but now is one of those times. When I finished the last phase around the 15th of December my ANC (Remember, that's the count of cells that fight off bad guys, my immune system essentially) was 60. It has to be 750 for me to start the next phase and right now I am at 480. My platelets (cells that help my blood clot) at that time were a very scary 6, which is worse than what they were when I got diagnosed. They have to be 75 for me to move on, but they're already back up to over 100- that means I'm allowed to shave my legs, but I'm probably still not allowed to do contact sports (That's funny, because I haven't even jogged in 4 months.) The plan, if my ANC cooperates, is to start phase 3: Interim Maintenance on Monday. We'll start off with a bang, with a new chemo drug called Methotrexate and my old friend Vincristine (the one that makes my finger tips numb) as well as a lumbar puncture over at the hospital. The following day I will get Pegasparagase which I'm getting used to but it makes us all a little anxious because it is relatively common that people have an allergic reaction to it. This overload of drugs within just a couple days is common during this phase of chemo, but thankfully I'll only be going in every 10 days other than to the Florence hospital for lab work and probably blood transfusions as needed.

As for 2015 as a whole, I've had better years. I think 2014 is my favorite so far (We started the year living in Alaska, moved home, got married, and I taught 5th grade at Mapleton, all while taking our health for granted.) 2015? It started off great, but then I got cut from my job at Mapleton. I got another job right away which turned out to be an amazing fit for me, but then, as we all know, I only got to teach for 2 days. Then everything changed.

I am ending 2015 with a new appreciation for life. I have gained perspective, empathy, and the ability to reach out for help and allow others to help me. I am finally taking that year off like I had always I would, it just looks a little different than I had hoped. I've spent more time on a couch this year than I ever have in my life. I've travelled to Eugene probably about as many times just this year than I had in all the previous years of my life. I haven't made the drive alone even once though, and because of that I have spent some amazing quality time with people who clearly love me because I know that it's not fun to spend your day in a chemotherapy treatment room. I've also had more people reach out to me and encourage me than I could have ever imagined. I've had old friends bring up amazing memories and new friends support me through the most difficult time of my life thus far. My family has never ceased to be there for me, and my grandparents have an open door policy halfway between Florence and Eugene for food and bathroom breaks. I've been gifted so many amazing things, and received so many delicious meals, from people who would do it any day of the week to people whom I never would have expected it from. I am so thankful for the people who have just spent time with me, because I can't imagine spending too much time alone with my thoughts on some days. All of these things have helped me to stay positive. A lot of people have commended my positivity, but honestly, my support system makes it easy. I know cancer is scary, and things could go south for me at any moment, but it's very rare that I even have time to think about that. My thoughts are filled with gratitude and I am always moving forward.

On to 2016. I doubt it will be my best year either, I think 2014 will be the winner for a while. 2016 will be a year where I spend the entire calendar year on chemotherapy drugs of all sorts. Things should slow down around May or June when I enter the maintenance phase (which will last for 2 years).

I only have one New Years resolution, and that is to do my best.

That's all I can do, and I know that things will get tough. Chemo wears a person down, and right now I am less than halfway through the tough stuff so I know there will be times where things will be very difficult: Staying positive, being nice, paying bills, being independent, the list goes on and on. But I promise to do my best. And I don't want to wish away the first half of 2016, because as hard as this all is, I know there are many things I'm gaining from it all, but in all honesty, I do wish that it was June already. I want my body back, my hair, my strength, my normal appetite, and my healthy life. Through it all though, I'll do my best.

Cheers to 2016 right now, because I know I'll be asleep before midnight.

Side Effects

Sorry I've been a bit MIA lately... It's been a bit crazy around here! I've had chemo in Eugene 4 days a week for the last two weeks, so I feel like I've spent most of my time on the road, going back and forth everyday! (We've put 3,500 miles on my car in the last 2 months)

It's actually been almost a month since I've written a blog post, so let me give you a quick rundown: I've had both good and bad days, unfortunately, the bad days seems to stand out in my mind a little better. As you know, I'm in remission, so nothing that has gone wrong actually has anything to do with the cancer, it's all side effects of the chemo and the antibiotics/antibacterials/antifungals that I'm on to protect my body because of my lack of an immune system from the chemo. And boy have I experienced what side effects are all about. The antibiotic that I was on reacted with the tendons in my feet, so I spent over a week unable to walk or put any weight at all on my feet. Max carried me or I crawled literally everywhere during that time.

I was so inactive during that time, that when I finally could walk again I was in such bad shape that my pulse would hang around 140 after just walking across the doctors office which was a bit concerning. I had an echo to make sure my heart was working like it's supposed to, and everything looks good, but my pulse was still way too high a week later so now I have yet another pill in the stash (the stash has 8 pills in the morning, 6 at night) to slow my heart down because the doctor said "my heart shouldn't think that it's on mile 20 of a marathon unless that's what I'm actually doing." And I'm not doing that any time soon. However, that new wonderful drug has lowered my blood pressure and now I get light headed if I get up too fast.

There have also been issues with headaches from lumbar punctures (I had 3 of them since I last wrote, and 2 of them went really well) and nausea because I guess you can't exactly expect to feel great after 9 chemo infusions in 11 days. The nausea medication is quite effective, however, it has side effects as well (I don't wanna talk about it). And then there was the night after I got a chemo drug that is a derivative of mustard gas that gave me some pretty serious other side effects that I also don't want to talk about, but long story short I spent about 36 hours awake and I am very thankful that it was the first day I could walk on my own.

That accounts for about 20 mediocre to bad days, but if I've done the math correctly, that leaves about a week of good days! I was able to go to the lighthouse one day, and to the beach another day. There have also been some days where I have been able to get outside and enjoy the good weather, and other days where I have allowed myself to lay on the couch all day (who knew that could be so nice?!) I also have an awesome bird feeder right outside my window, so I have been honing my bird identification skills. I know that many of you are not surprised by that even a little bit- birds are far more entertaining than anything on TV during daylight hours, midweek. "A Guide to Field Identification: Birds of North America" has a permanent home on my coffee table.

Sorry that this post is 3/4 negative so far. I'm trying to be real with y'all. 

This Thursday was my last day of having chemo 4 days a week until the spring, which is very exciting. For the remainder of this phase I just have chemo once a week, and I will be finished with it the week before Christmas. Then we have to wait for my platelet and neutrophil counts to raise back up to a some-what normal level, which will hopefully take a little longer than a week so that I can have Christmas off (my own selfish wishes, because fortunately my body has been recovering very quickly, which is great, but that just means I get more chemo closer together). After Christmas I will start the 3rd (of 5) phase. It will be a different combination of chemo drugs, some of which I have already had and some that I haven't. I will also have (only) 2 lumbar punctures during that phase, and another bone marrow biopsy at the very end to reassess my remission. Each phase is 8 weeks, so that will probably happen in late February if all goes according to plan.

I'll be better about keeping the blog updated, I promise!

Chaos, part 2

I wasn't planning on writing ANOTHER post about chaos, but alas I must, because yesterday happened.

Yesterday Max and I drove to Eugene at 7:30, for my 9:30 check in time, and 10:30 lumbar puncture appointment. When I got there, I assumed they would need to do blood work, because all of my counts are very low from the chemotherapy. I got a platelet transfusion the day before yesterday, so that they would be high enough for the lumbar puncture to happen. I got my blood drawn, and was told that the people performing the procedure were ready for me as soon as my blood work came back. When we got my blood work back (1 hour after procedure time) I was told that my platelets were too low, they were 39 and needed to be 50 to do the procedure, so I would need to have another platelet transfusion before they could do it. My doctor doesn't work on Fridays, but they had to get the "OK" to do it, so they contacted another oncologist at my clinic. He said I was fine to have the procedure, because they couldn't give more platelets unless I was below 20. However, the doctor doing the procedure still wasn't cool with that. So apparently I'm in limbo if my platelet count is between 20 and 50, and nothing can be done (or it was just a disagreement between doctors, we'll never know...) Unfortunately, it took us 5 hours to come to any sort of conclusion, before we gave up so that I could get my chemotherapy infusion over at the clinic before they closed.

Getting chemotherapy is usually very straight forward, however, on Tuesday when I went in to receive my lovely Vinchristine (the one that makes my fingers numb) and PEG-Asparaginase (A high likelihood of allergic reaction) I was only able to get the Vinchristine because a delivery had been delayed and PEG is an uncommon chemo drug so they weren't able to get it from anyone else in town, so it was rescheduled for yesterday. There weren't any nausea drugs prescribed to go with this chemo drug, and they also didn't have any orders to give Benadryl with it in case of an allergic reaction, so I was thankful to have done my research beforehand so that I could speak up and get all of that done. This did slow the process though, and with those extra orders to the pharmacy, plus a 1 hour infusion, and then 1 hour of observation afterward to be sure that I wasn't going to react, we were able to leave the clinic by 6:15, over an hour after they had closed.

So, long story short, we spent 12 hours yesterday and I only ended up getting 1 chemo drug. I now have to reschedule my Lumbar Puncture, the problem is that they are supposed to be 7 days apart, and my next 2 are scheduled for the next 2 Fridays, and I'm already a week behind schedule because we delayed because I still had the headache last Friday.

I've got 3 potential appointments next week, but I don't know times or any details until I hear from the doctor on Monday morning. The waiting game continues.

I just love these Emily McDowell Empathy Cards... 

The good news:

• I feel pretty darn good. My headache from the last lumbar puncture finally went away. 
• The doctor told me on Tuesday that he wouldn't be surprised if I spiked a neutropenic fever this week because my ANC (absolute neutrophil count) is only 20 (normal range is anywhere from 1,600-8,300), and the longer a person is neutropenic the greater risk of infection (I have been for almost my entire treatment) and I DIDN'T!
• I have been given permission to get blood work and transfusions done here at the hospital in Florence, so that means much less driving! 
• I'm almost out of hair to shed all over everything, but that means that I might cave here soon and completely shave my remaining hairs. 

In other good news, I have my moments of being scared out of my mind, and thinking "THIS ISN'T FAIR", and avoiding thinking about the future beyond all of this chaos (I see a blog post about all of that in the near future)... but mostly, my head is in a good place, and I am so appreciative of all the people that are supporting me on a daily basis. In the beginning I was swamped with people reaching out, and that was awesome, but now I am even more thankful for the people who continue to reach out. "Is there anything I can do?" is a great question, but it's not something I can always answer. "I'm coming over with snacks to watch a movie, pick the day." is something that is much easier to respond to, I can't make many decisions very easily right now, but choosing a day that I have free is something I can do. Either way, I am so thankful for all of the positive people in my life. They make this a lot easier.

Chaos, part 1

Everywhere I seem to go, I cause utter chaos. The only place I go though, is hospitals. So I mostly just cause chaos there.

On Tuesday I had my first appointment with my doctor in Eugene. It seems like ages ago. We met him, he casually said he thought we could start treatment the next Monday, and I replied that I was actually supposed to start LAST Monday. Long story short, he runs out of the room, builds a program that makes it so other people can see what drugs I need, when, and then proceeds to order as many of my chemo drugs as he possibly can, does some improvisation, gets my blood tested, and had almost every nurse on the entire floor doing something in order to start my treatment that very day. Wednesday and Thursday I went back for regular chemo treatments, without too much chaos other than driving a total of 3 hours each day for an hour long chemo infusion.

Friday I had a lumbar puncture, which was supposed to happen at a different hospital, and after about 10 phone calls and much confusion I was told to just come to RiverBend in the main hospital. When they came to get me for the procedure I had heard nothing of any anti-anxiety meds, so I asked for them. Apparently some tough people don't need them? We spent the next 30 minutes with about 4 different people trying to get me in their system, in order to write me a prescription for the drug, to get the drug, and give it to me before I was rolled down 6 floors for my procedure. The procedure was much different than the other 3 times I've had lumbar punctures. Usually they are very quick, and I am either laying on my side or sitting, in my normal clothes. This time I had to lay flat on my stomach, and they used an x-ray machine to be sure that their needles were in the right places, and I had to wear the stupid "your butt is showing" hospital gown. Unfortunately that means the procedure took much longer than usual. Afterward I laid flat for an hour again in my fancy room, and then went over to the clinic to get my chemotherapy infusion for the day.

Saturday my clinic I usually go to is closed, but since we got a bit behind on my first day of chemo I had to make it up on Saturday in order to be on schedule. We met the nurses, got things rolling right away, with only a few hitches: They didn't have my med list, and they didn't have an order for me to receive IV nausea meds before my chemo (At this point I am super nauseas from 4 consecutive days of chemo, and I have an incredible headache from my lumbar puncture the day before, a common side effect). So we move into just getting the chemo, I figure the sooner we get it going to sooner I get to go home and not drive to Eugene again for 2 whole days. We have all sorts of issues, and can't figure out why the chemo isn't working- the pump is beeping constantly (awesome for my headache). After trying to fix the problem for an hour, we realize it's because my PICC line is clogged on the inside, and nothing can flow through it. Over the course of the next 2 hours I have 3 different nurses trying to fix it, giving me an IV, and redoing the chemo through my new poke. We were finally done 3 hours later, I was asleep by 7:00 that night and slept for 14 hours.

I forgot to mention, during all of this my right foot was reacting to one of my antibiotics and I had a tendonitis sort of situation, where I couldn't put any weight on my foot.

What. A. Week.

I started writing this post during that crazy week, and now the next one is already almost over as well! This week has not been quite as chaotic, and I'm 3/4 of the way through my treatments this week! However, that headache from my lumbar puncture on Friday? It's STILL with me. And I'm not talking just an annoying little headache, I'm talking can't function, shut up and turn off the lights headache. The good news is it usually goes away when I'm laying down, so I have been spending almost all of my spare time laying down. Unfortunately, there hasn't been a lot of spare time. Because I can't quite bare to start over again before the headache even goes away, I postponed my lumbar puncture that was supposed to be this Friday, and will continue them starting next Friday (a glorious 3 more, in a row!)

And I stopped taking the antibiotic that was causing the reaction, and my foot is almost all better!

So, I guess the chaos continues?